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Yale Paper: Long COVID/ME/CFS

Post-COVID Recovery & COVID-19 | Last Active: Jun 1 1:36pm | Replies (26)

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@kgatlast

Hi Joan,
Speaking of apologies for not replying sooner, all correspondence from Mayo Clinic since 5/14 has been going directly to my spam folder. Just noticed the problem this morning (5/31). I’ve been preoccupied with other health issues, alas.
I have not encountered anyone else with lymphedema symptoms and possible post covid (long Covid) linkage.
Will post updates about homeopathy when available. I will be treated for elevated Epstein Barr titers with Intravenous ozone infusions… beginning in about three weeks. All I can do is hope for some relief.

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Replies to "Hi Joan, Speaking of apologies for not replying sooner, all correspondence from Mayo Clinic since 5/14..."

At least you checked your spam, Keith! Thanks.

How does one persuade med personnel to check for Epstein Barr titers?

The COVID clinic at a DC university has sorta dismissed my symptoms w/o examining me - based solely on one telemed conversation. They want me to see a lymphedema specialist and for the other symptoms that occurred at the same time? See the people I've already seen (podiatrist x2, ER x 2; dermatologist x2 etc.) or find new ones.

I'm discouraged.

My hope for you is relief. One of us must get some.

Thanks for your thoughtfulness.

Joan

@kgatlast, I'm glad you found the notification emails in your spam folder. To help prevent it from happening again, please add mailto:noreply@nX.hubapplication.com to your email address book or safe sender list. Here is more information.
- How to add Connect to your Safe Senders List https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/what-to-do-if-you-arent-getting-connect-email-notifications-anymore/

You can also use the onsite notifications to follow activity in the support groups you follow:
- How to use onsite notifications https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/how-to-use-onsite-notifications-stay-connnected/

See more tips in the Help Center https://connect.mayoclinic.org/help-center/