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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 4 hours ago | Replies (324)Comment receiving replies
This has only been around, I think, 7 years. Not very much out there for treatment. MS medication does not work on this. I have been on steroids since March 2017. I have relapses less now than in the first 5 years. I have been doing research to try and help with food, exercise (as I can) and lifestyle. I am looking for someone to connect with to be able to help one another (or definately more than 1 person). Thank you, Sue
Replies to "This has only been around, I think, 7 years. Not very much out there for treatment...."
@suec147. Hi, Sue. I’m Becky and I started this discussion. I also have Clippers, diagnosed in 2017. I’m still on steroids but trying to get off. I’m also on mycophenalic acid and just started rituximab infusions. Praying that something works well! I’m 75 and all this is no fun!
I hope some other members will check in. @donnyboy is also new to Mayo Connect and Clippers.
Also what you want to do is use the @ before a member’s avatar. This way it alerts the member thru email that there is a message. Just like I did with your name at the beginning of this message. Glad you joined us! Is there anything I can answer(not that I know a whole lot!)
Connect
Hello @suec147, I combined your discussion with another discussion titled, "CLIPPERS: Looking to connect with others" - https://connect.mayoclinic.org/discussion/clipperslooking-to-connect-with-others to meet the many other members discussing living with this diagnosis.