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How are the super long-haulers doing 3 to 4 years out?
Post-COVID Recovery & COVID-19 | Last Active: May 4 1:08pm | Replies (116)Comment receiving replies
October 2021 is when it started for me. I completely understand the emotional toll this condition takes. I’m not quite as young as you(38), but had just completed 100mile trail race a few months prior to getting COVID. I aspired to do so much more athletically, but I still can’t tolerate exercise. Getting thru Work and taking care of the kids are incredibly hard / impossible on some days.
I’ve definitely experienced moments where I feel like I’m on the other side, only to be disappointed by a flare up or new symptom.
Lately I have been teetering on the edge of giving up on finding answers and just letting this virus have my body. Giving up is not in my nature, but It’s all so exhausting and feels frivolous.
I wish you luck in finding answers and getting back to life.
Replies to "October 2021 is when it started for me. I completely understand the emotional toll this condition..."
I (35F) also got it in October 2021 and am in just about the exact same place as you are. I've stopped taking almost all of my supplements (I was taking 30+ in the AM and 30+ in the PM), stopped going to most of my doctors, and am radically trying to find joy / comfort / peace anywhere I possibly can. I don't know if this is my long-term solution, but I cannot do this anymore. This disease stole my life, I'll never be able to articulate all of the ways this shattered everything about me, and I am DONE. Now I only want to find myself again and redefine myself without this soul-sucking, dream-crushing, life-stealing evil. And I have to believe it is possible, so that's what I'm doing. Laugh as much as possible, say no to anything that brings you negativity if you don't absolutely *have* to do it, say yes to indulgences, refuse to participate in anything that doesn't serve you, search for ANY opportunity for sweetness, comfort, connection, meaning, and play. THIS is my new treatment regimen. Sending you love < 3
I had one Dr who supposedly was specializing in long COVID tell me "May be you should just accept the way you are?"
I could not believe what I heard. It has been 4 years now that I have had this, and I am not getting better. I will never give up looking, trying
I obviously did not go back to that Dr.
I am so saddened by your story and others. I have had long Covid symptoms primarily fatigue and insomnia for almost a year. After having every test imaginable in nuclear medicine and endless blood tests, I was officially diagnosed with Long Covid: fatigue, insomnia, and PEM. I am approaching tx via different avenues. My social worker just recommended a book, “Mind Your Body” by Nicole Sachs. I am sharing this because I haven’t seen a reference to the program in this book. I just ordered Vision as a technological approach to assisting with monitoring physical exertion. After my last crash, I need ways to figure out more movement. I try to stay current with the latest research…..My best to you and others.
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Hello, thank you for sharing about your experience. I am sure it is so hard to go from being that active (100 miles, wow!) to not being able to do much activity. I can relate that sometimes just getting through the basic daily routine can be so difficult or impossible. I know it is so frustrating, but maybe you can view it not as giving up, but accepting what is and saving energy by not struggling against it. That's something I need to work on too - it's ok to accept not feeling well, and recognize our daily limits, which is not the same as giving up altogether and still leaves room for hoping and working to feel better. Keep hanging in there! May you continue on the path to full healing.