Brother diagnosed with stage 4 colon cancer

Posted by steele @steele, Apr 19 3:53pm

My brother was recently diagnosed with stage 4 colon cancer. The cancer has spread to his lungs. He has 4 nodules located in the lower part of his lung with two measuring .8 one measuring 1.0 and the last one measuring 1.3. I do not know if this is mm or cm? I am just wanting to take part in this support group discussion hoping to find people who have had similar diagnoses and have come out the other side. We are a very close family and are really struggling with this news. He starts chemo this coming Tuesday. His doctor has him doing chemo in house so to speak one day and then wearing a machine for 46 hours while home, returning back to hospital for it to be removed and then getting a shot, I think to build up red blood cells. He will do chemo with this regiment every other week. This is all I know.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

@steele

Well, after 3rd round of chemo, my brother said this one hit hard. Up and down all night with stomach cramps, gas, on toilet most of the night and this time throwing up from nausea😢. If I understand the process, each time may or does get worse side effects. He is scheduled for 12 total. I know I have read somewhere on here that often times patients need a break before finishing their scheduled infusions. Anyone have suggestions for comfort? He got the pump off yesterday, is scheduled for his first CT scan a week from today on May 31st. The last two rounds showed by day two after pump removed, felt significantly better.

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If nausea is severe, injected meds are the most effective in combatting them.

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My husband has stage 4 colon cancer with spread ti both lungs. He had 12 rounds of chemo. Had the same side effects you mention. He took 3 months off last summer and the tumors in his lungs doubled in size do 12 more weeks of chemo. He finished in January snd PET scan looked ok. Is now taking chemo pills. He sleeps a lot but is able to go fishing and went deer hunting last fall. He will be 77 in 2 weeks.

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No CT today, want to wait until 6 chemo’s are complete. But did get great news, the blood marker of my tumor was at 24.2 and is now down to 9.1. The normal is 5. Is a sign that the chemo is working

This from my brother today after meeting with his oncologist. I’m not real familiar with the jargon?

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@callie1234

Hi amyb5, I am the other sister, my brother has done 3 rounds of chemo so far and now the side affects are starting to show up. Throwing up, diarrhea and not getting much sleep. As we were all hoping for no side affects it is really kicking him

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@callie1234, how is your brother doing? Did his oncology team suggest that he get medications to help with the nausea, vomitting, etc for the next chemo session?

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@colleenyoung

@callie1234, how is your brother doing? Did his oncology team suggest that he get medications to help with the nausea, vomitting, etc for the next chemo session?

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That seemed to be a one time thing. Now it’s just the insomnia that is really getting to him. He does his 4th round tomorrow but he got some really good news at his appointment Friday. When he started all this, his blood marker of the tumor was a 24.2 and is now down to a 9.1. Sounds like the chemo is doing its job. The doctor wants him to finish 6 rounds before they do a c-t scan. Is all this normal in your opinion.

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That's normal routine for chemo I am looking at 8 sessions and in-between session 2-3 After session 5 Mayo's plan is to do a Cat & MRI to see if we a succussing on killing the cancer I had 25 session of radio before the chem. If you have a port please note they itch like no tomorrow And after a chem you will feel like %^&(( for about 5 days & then get better It's not a fun trip

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This topic has been discussed before but want to mention to ask your oncologist for a CTDNA test.... I think the test you refer to is CEA. Data published just recently shows that CEA is not useful at all to detect recurrence. CTDNA is recommended right after surgery and again 4 to 6 weeks after completion of chemo. Try to complete the full chemo regimen! It's tough! But it's getting rid of any residual cancer!

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After 2nd chemo treatment and 9 days after infusion treatment any ideas what is going on????
Am so dizzy I fall down upset tummy sweating like no tomorrow at nite unsure to even drive a vehicle
Doing the Folfox infusion plus they added a 3rd chemical Infusion Pump gave out on the 2nd day so only got half of the new drug My feelings are feeling terrible Any ideas folks

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@cvestor

After 2nd chemo treatment and 9 days after infusion treatment any ideas what is going on????
Am so dizzy I fall down upset tummy sweating like no tomorrow at nite unsure to even drive a vehicle
Doing the Folfox infusion plus they added a 3rd chemical Infusion Pump gave out on the 2nd day so only got half of the new drug My feelings are feeling terrible Any ideas folks

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Yours is consistent with what I experienced.

I had severe balance, vertigo and weakness issues, specific cause of which was never determined. Once I was being led to get a weighing and collapsed. Nurse (half my weight) caught me halfway down, two others pushed me into a wheelchair. No chemo that day! Got a quick ride to the ER where nothing was found. Was referred for additional cardiac work which also found nothing.

The oncology folks dropped the oxaliplatin.

My cardiologist lowered my BP meds to increase my BP which seemed to help some. I did some balance-improvement PT and some online brain exercises to improve brain speed, but I had balance issues long after completing chemotherapy.

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thanks for the reply as I am not alone in falling to the ground BP is not the issue as I run high like 170 /89 makes folks nervous but I live with it Any other issues I should look forward too??

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