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JohnWBurns (@johnwburns)

Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Aug 16, 2021 | Replies (501)

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@johnbishop

Hi @rivergirl8243, If you click the Reply button under the post you are replying to the post. If you click the Post Reply button at the bottom of the page you are just creating a new post directed at any in the discussion. Also using the @ member name sends an email notification to the specific member and also addresses who your post is for.

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thanks

In June of this year, I flew to Mayo Clinic in Minnesota … yes during COVID 19, had multiple tests and etc. with my care team and Neurologist, only to be told to go home they couldn't find anything medically wrong me, this doesn't sound like Mayo. Now they want me to return, I suppose they needed more than 4 days and multiple tests with me. In the meantime, I've seen several neurologists and primary care in my state. No one seems to know what my problem is. For several months my gait and balance have been off, I look like I'm drunk when I walk. My left leg and side are weak, I've fallen several times just trying to turn around or back up. I'm extremely fatigued. Larry holds my hand when I walk. I have degenerative scoliosis but have been told (by Mayo) this isn't the reason for my issues. I'm old but this should not be part of aging. I take no medications, My question to the group: does it sound like Ataxia? Should I bite the bullet and return to Mayo?

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