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Replies to "Yes, I was having a ton of new or worsening symptoms. Doc kept saying it was..."
Neuroendocrine Tumors (NETs) | Last Active: Jun 8 10:00am | Replies (11)
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Yes, I was having a ton of new or worsening symptoms. Doc kept saying it was just gastroparesis, but you know your body.
Replies to "Yes, I was having a ton of new or worsening symptoms. Doc kept saying it was..."
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@lloomis413
I'm sure that you are glad that you kept investigation the reason for the symptoms.
Here is a link to some information, which you might find helpful, about tests, etc. that can be used for diagnosing (as well as following up) for NETs:
https://www.carcinoid.org/for-patients/diagnosis/
Other than the upcoming NET Spot Scan, have other tests been done such as endoscopies? Was any blood work done to check Serotonin levels?