It saddens me for you. My pain has improved a little but I am only 7 weeks from having Boston Scientific SCS. My trial was awesome, 80% relief!!! I cannot imagine what you go through. I can at least stand up, sit down and stay seated pain free but am so eager to have somewhat of active life. I don't even have a refill for my pain medication which I don't understand. I'm 77 years old and have had many prescriptions (knee replacement, hip replacement and broken ankle). I have a wonderful hubby who is a great caregiver but that is growing old for him. I understand as I was a caregiver for years but it was with pay!!! I am hopeful that in time things will improve. Suffering is difficult (PAIN!) but I shall TRY to sit here (pain free when sitting) and be grateful that I can get relief sitting. I pray you fine a solution