You have persisted through a great deal of difficulty to arrive at a diagnosis for a rare autoimmune disease.
Your doctor may not have much experience in treating
your condition and is concerned that you get the best
care and wants that third opinion at a multi specialty
tertiary care clinic. Your vasculitis does require management by doctors with special expertise. Your
rheumatologist offered an appropriate medication but you need other options to manage the symptoms.
Collect all of your records and ask them to advocate for
you to get an appointment. You may qualify for financial
assistance in obtaining biologic meds. Getting connected with this support group is a good start.