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What to Expect as a Transplant Caregiver May 31 10:34pm | By Kristin Eggebraaten (@keggebraaten)Comment receiving replies
Replies to "Dana, can I ask how long you waited for your heart on the transplant list? Of..."
Sure, I want you to realize I was pretty sick. As a Man of faith I had many praying for me at my Church and I do believe in miracles. I arrived at Mayo via ambulance early December 2017 for an evaluation.my ep cardiologist from another hospital was running out of ideas and I had been in the Hospital since early November. So the plan was to be evaluated for the eventually of needing a transplant just in case he said.
Well during the eval things got a lot worse and I was at the point I probably was not.leaving.the hospital without one. They were still trying different options and at the same time working on the approval of a transplant.
So I finally got listed on New Year's Eve at a 2 level. Back 6 years ago there was 3 levels near the top 1a which was the highest or near death 1b was you were hospitalized and urgent and 2 was you were in need but could go home and wait. So I originally was at a 2 but on the 3rd of January 2018 I had an incident where it appeared to be a stroke but found out it was the heavy dose of medicine I was on to keep my arrhythmias going. So because of that I was not leaving the hospital until a heart was available. So they were.still.trying.different.things to help fix on old heart when on the 5th all testing stopped and I was scheduled for a pet scan when the nurses put me on no food telling me the doctors would come it shortly. Well it was a Heart and so basically I was listed for 5 days. But like I said I'm convinced God was in the details. So please know I was pretty sick and I've heard 6 months is avg.