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MAC/NTM is Different for Everyone, Treatment might be different too

MAC & Bronchiectasis | Last Active: Jul 26 12:32pm | Replies (116)
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@liangni1

I had bing on big 3 and Arikace treatment for MAI 18 months and had 11 times negative culture results.Because I have had more coughing than usual and blood spots in the sputum.My pulmonologist ordered Bronchoscopy for me.The smear fount Aspergillus、From now on I have to fight the Aspergilus infection and stop antibiotics.Anybody know about this fungi? I am nervous.
Thanks for any information.
Liangni1

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Replies to "I had bing on big 3 and Arikace treatment for MAI 18 months and had 11..."
gigiv | @gigiv | May 30 8:54am

I was treated for Aspergillus for 3 months in fall 2022. I found the first month of treatment harsh, but the last 2 were super easy. It made a HUGE improvement in my health and in my SpO2. At my last bronchoscopy in dec 2023, there was NO fungi of any sort. I think the antifungal they gave me was Clotrimazole, but I am not 100% sure, The reason the first month was so harsh for me is, I think, partly because the doc said I was not asthmatic and did not need my Advair. My body did not agree at all. After 1 month of misery, I asked for the return of Advair, they gave it back to me and told me to nebulize Budesonide to help me further. Both helped tremendously. Good luck with your fight! Best wishes.

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Rick | @rstel7272 | May 30 9:48am

After Mac for years. I also developed aspergillus. I've been on voriconazole for 18 months

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