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@stevestenberg31

How old are you? Why watch and wait? I had symptoms of GERD and rheumatoid arthritis for over a year before they found NETS in my liver, SI and Stomach. They kept miss diagnosing until I had an ultrasound of the abdomen thinking I had gallstones Once the primary SINET was removed these symptoms disappeared. I've learned that over 58% of NET patients are diagnosed after the cancer has spread. And ... ultimately it metastasizes in over 75% of patients.!? Why not MRI and or PETscan? My MD/PhD oncologist NET specialist studied at Vanderbilt(cited above) as well.

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Replies to "How old are you? Why watch and wait? I had symptoms of GERD and rheumatoid arthritis..."

I am 64 years old and had a PET scan Feb of 2023 that did not show any further NETs but for some reason my stomach and colon keep making lots of polyps. I also had an ultrasound of the stomach at Vanderbilt but same, just normal polyps. Was taken off Omeprazole in April after EGD that I've been taking since 1995 in hope that will help with the polyps. I've had swelling in lymph nodes under right arm that concern me but will wait on the scans that my team have scheduled in August. Hopefully nothing.