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Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)

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@becsbuddy

@deannweir I honestly don’t think the medicine is working. Darn, darn. I have an autoimmune disease that caused lesions on my brain. After high dose steroids, most of the lesions are gone, but they left their mark. 😥. I’m slowly tapering off the prednisone (now that I get twice yearly infusions of a chemo drug). The neurologist thinks the prednisone could be causing the fatigue. We’ll see. Tomorrow’s another day!

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Replies to "@deannweir I honestly don’t think the medicine is working. Darn, darn. I have an autoimmune disease..."

Hi Becky @becsbuddy, I think your neurologist is right about the prednisone causing fatigue. I was always tired and had to force myself into a "keep moving" attitude. Here's some information that you may find helpful from Medical News Today -- How to deal with prednisone withdrawal: https://www.medicalnewstoday.com/articles/322536

Hope you have a good day!

What a bummer. I never got to the point of infusions. I guess I didn’t feel bad enough.