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When do you know if it is time to start dialysis with CKD?
Caregivers | Last Active: Jul 8 11:24am | Replies (45)Comment receiving replies
I need all the information there is.
We both went to a two hour meeting with the information about dialysis and transplants about 2 years ago. I went to all the transplant team testing and meetings with him. I went to some nephrologist appointments with him. I asked one or two questions about what symptoms to look for and what she uses to decide starting dialysis.
This not wanting me to go is a new thing. Can’t know if he is feeling fearful about what will happen, or if he doesn’t want me to worry ahead of time. We have had many recent conversations about what going on dialysis means.
Thank you for your concern. I am taking it to heart.
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@jprust It could be a combination of things. Perhaps he is now mentally and emotionally preparing himself for dialysis, and thinking a lot how he needs to approach it. Dialysis is not a death sentence. My husband was on peritoneal dialysis for 5.5 years before his transplant. He continued to work full-time, and took his camping trips, etc. A lot of it all is a mindset. You do dialysis to live, not live to do dialysis.
As @becsbuddy said, you need to know what to do, just like he does. I truly believe he will find, in the end, comfort that you also understand what he is facing, and how to work with any difficulties that might arise, and it will be of comfort to him. There is nothing worse than feeling alone while dealing with a health issue!
Ginger