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Internal body vibrations all night

Neuropathy | Last Active: Jun 1 7:55am | Replies (45)

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@j77

I am glad you got out of healthcare.So did I.I was forced to because I got so sick.I am sure working in Healthcare during the Pandemic did not help my Health with all the stress.My one Rheumatologists ran so many tests,but I am sure more could be ran.I was looking at dermatomyositis and polymyositis.It is just hard because all my blood work is coming out normal along with the other tests.My primary did bring up that I could have a seronegative disease where it is not showing up on the tests.I am definitely at the point where I just want to know what it is.I remember it took a while to figure out I had Hashimito's disease.I went to the Best Doctor at John's Hopkins and he could not figure it out.Luckily a local Doctor figured it out from my tests and symptoms.Hopefully a neuro at NIH had seen something similar to what I have.Thankyou!

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Replies to "I am glad you got out of healthcare.So did I.I was forced to because I got..."

Yes, seronegative autoimmune diseases do exist. Given your Hashimoto’s (and its seronegativity—yes?), autoimmunity should be high in the differential.

Hmm, just saw an article about a combination of myelitis and myositis being induced by Covid. It’s rare, but your symptoms are rare, so maybe it’s worth a shot.

Best of luck with NIH. As I’ve said before, I hope you get answers.