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When do you know if it is time to start dialysis with CKD?
Caregivers | Last Active: Jul 8 11:24am | Replies (45)Comment receiving replies
That is good advice. I would love to address this with him. He is a retired dentist so he feels he does tons of research with medical journals. At this point he doesn’t even want me to go with him to the nephrologist because I might say something he doesn’t want me to say.
Thank you for sharing your experience with everyone. It is very helpful.
Replies to "That is good advice. I would love to address this with him. He is a retired..."
@jprust I hate to just jump into the middle of your conversation with @gingerw , but I thought I would add some thoughts or two. Whether husband chooses standard dialysis or peritoneal dialysis, he will need someone who also knows safety and procedures. You can ask the nephrologist to suggest that your husband bring you to all meetings. I used to teach peritoneal dialysis to hospital-based nurses and it even took them some time and practice before they caught on. Once he learns the procedure, it’s relatively straightforward.
I just know that you two can learn this and be successful!
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Oh, gosh, what is he afraid you might say?! I bet as a retired medical professional, he can understand that having the best physical condition possible when starting a new protocol is important. Personally, I would like my husband to be with me at appts, for nothing else to hear what they say, in case I miss something!
rsnhope.org is a very informative website that touches base on many aspects of kidney disease. There are also sites from DaVita Kidney Care, and Fresenius Kidney Care. Arming oneself with information, asking questions when there is uncertainty, all help you to navigate through the process.
Ginger