Yes! I have been dealing with that too! My doctor says the same thing. It is hard to know if the issues are due to Thyroid, side effect of medication, or some other cause. The ONLY thing I have been able to figure out is that subtle medication changes can have BIG effects. The range of “normal” is significant. When my TSH is very low I have very bad side effects. When my TSH is midrange, I am still having side effects but they are “ better.” High doses of Synthroid were very bad and Tirosint made me think I was having a stroke! I am currently on 25mcg of Synthroid 5 days a week….. feeling “ better” but still too many side effects to say I feel good. ( blood test next week might give us a clue on what to try next) One of the odd side effects is internal tremors….. I feel like I’m shivering inside yet no tremors outside. Joint and muscle pain, leg cramps, insomnia and being unfocused seem to still be here too but less extreme. I have appt with Rheumatologist in a few weeks; Dr wants to see if something else is influencing this. I don’t know, but whenever I went off the medicine ( due to extreme reactions and pain) the issues went away for a while. It is a tricky situation! My thyroid numbers fall in the normal range; you have to go by both thyroid numbers AND your symptoms and how you are feeling. My first Endocrinologist just kept telling me we want to keep your TSH low to prevent cancer and kept increasing my dose of medicine. I could not take all the side effects… I had to change doctors because she kept increasing my medication and I just kept feeling worse. Definitely advocate for yourself. Good luck!

I forgot to mention…. Prior to surgery, I had a large right sided nodule but my blood tests were ALWAYS normal. No signs of any thyroid disease! Post surgery, I was diagnosed with Hurthle Cell Carcinoma and they said I had Hashimotos Thyroiditis….. the thyroid seems to be a very tricky organ!