← Return to Prednisone for over a year along with Kevzara for last 5 months

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Prednisone for over a year along with Kevzara for last 5 months

Polymyalgia Rheumatica (PMR) | Last Active: Jun 3 11:35am | Replies (47)
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@marielynn

Hi,
So sorry you have been dealing with this for so long. I am so worried that I will never feel good again... I have tried to split the dose but it interferes with my sleep, and I already have sleeping issues. I was hoping the Kevzara would help me taper but after getting down to 8 mg for about 3 weeks I was in pain every day. I went back up to 15 mg and got rid of the pain and now I am at 12 mg and will probably stay here for a while. It is so frustrating for me because I have always been a healthy eater and I exercise and every day I just struggle and there is so much I want to do.

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Replies to "Hi, So sorry you have been dealing with this for so long. I am so worried..."
DadCue | @dadcue | May 29 2:31pm

How did Humira and Enbrel work for you. I assume these TNF-inhibitors were for RA before you were diagnosed with PMR. Did Humira or Embrel ever work for you? Do you think your current symptoms are more like RA symptoms or more like PMR symptoms. It might be hard to know but describe your symptoms with as many details as you can.

Kevzara is an IL-6 inhibitor that is FDA approved for both PMR and RA but it might not work for you.

"If your RA symptoms haven’t improved as much as you’d hoped after three months of taking an IL-6 inhibitor, or the drug is causing problems, your doctor may recommend switching to a different biologic. If you continue to take a treatment for too long, even though it isn’t working, you could develop joint damage caused by uncontrolled inflammation."

https://www.everydayhealth.com/rheumatoid-arthritis/what-to-expect-when-starting-an-il-6-inhibitor-to-treat-rheumatoid-arthritis/#:~:text=IL%2D6%20inhibitors%20tend%20to,of%20months%20after%20starting%20treatment.&text=Replay-,IL%2D6%20inhibitors%20are%20a%20type%20of%20biologic%20%E2%80%94%20a%20drug,made%20from%20a%20living%20organism.
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