Regional complex pain syndrome

Posted by reedvr2 @reedvr2, May 6 4:39pm

Hi new to this group, I had a tlif surgery in July 2023 I had a complication during surgery CF leak ever since then I have been dealing excruciating pain going from my buttocks radiating to the back of my leg and into my foot as well as of September I was diagnosed with the regional complex pain syndrome . I have different medical stuff going on now I don't walk the same. from my knee cap down it is purplish blue, I have never had this type of pain before my life when I say excruciating it is excruciating I have done multiple different procedures and still trying different stuff.Any recommendations.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@bebold

I just updated my post probably after you read it. Not a big change just more clear.
I am so sorry you were dx'd with CRPS. Also autoimmune. I just was chosen to be part of a study for autoimmune disorders.

I've had CRPS since my late 20s (now 69.) Its not easy. I'm so sorry.

Jump to this post

How do I get involved in the study? I will do anything to help future victims of this terrible disease. Im interested in support groups, too. Ive found FightThe Flame.org.

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