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Internal body vibrations all night

Neuropathy | Last Active: Jun 1 7:55am | Replies (45)
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@j77

Yes!It has been so crazy!Going from a healthy person in my 40's exercising all of the time to barely being able to function.I was looking into myelitis.It looks like alot of things can cause it.Autoimmune Diseases,Viruses,etc.I just wonder if that one time iron infusion set ot off and than everything went haywire in my body.My Brain and Spine MRI were o.k.,but I wonder if they are missing something with the spine.I have not had a spinal tap or muscle biopsy yet.Just the two EMG's.You are correct about ALS.The only reason I keep on thinking it is a possibility of Motor Neuron disease is because of the twitching all over and the loss of strength when talking,swallowing,chewing.I guess that could be brought on by other diseases.I did check for MG,but had not been checked for Lambert Eaton Syndrome yet.There are so many diseases.I will let you know if they ever figure it out.Thanks Again!

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Replies to "Yes!It has been so crazy!Going from a healthy person in my 40's exercising all of the..."
ratmum | @ratmum | May 28 6:48pm

Exactly! I know exactly what you're saying: one day, you're a perfectly healthy person and the next you're flat on your back in a hospital bed. I was in the Neuro ICU for a few days. Very bewildering experience, to say the least.

Indeed, myelitis has many possible causes. Mine is autoimmune--a positive autoantibody. If your neuro symptoms immediately followed the iron infusion, that would be worth looking into. (I'm sure you mentioned it to your doctor. What did they say?) It could be a trigger, although I have not heard of it. (That means nothing, BTW.) I'm thinking Covid triggered my bout of myelitis.

You can lose muscle strength with myelitis. It just depends which part of the spinal cord is damaged. I have only sensory symptoms, which means the damage is in the posterior column of the cord. If you're having sudden onset of motor and sensory symptoms with no evidence of brain dysfunction, I have to wonder why myelitis wasn't considered. Maybe because of the negative SC MRI.

You are a puzzle. I was at first, at least with the cause of the myelitis. I hope you find answers soon. I know how stressful not knowing can be.

Take care.

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