← Return to Lung nodule could be slow growing carcinoid: Watch and wait is scary

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@hopeful33250

Hello @terradean,

I can understand your reluctance to have major surgery. Before surgery, it is always important to get a second opinion. Have you considered this option?

A consultation with a NET specialist would be best. Mayo Clinic has NET specialists at all three of their locations (you will find appointment information at this link http://mayocl.in/1mtmR63). If an appointment at Mayo is not possible, I would seek an opinion from another NET specialist (here is a link to NET specialists throughout the U.S. https://www.carcinoid.org/for-patients/treatment/find-a-doctor/).

Was there a scan which indicated a reason for this surgery?

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Replies to "Hello @terradean, I can understand your reluctance to have major surgery. Before surgery, it is always..."

JULY 22 I was diagnosed with uterine cancer adenocarcinoma and had a hysterectomy, no node or tube involvement, did 3 chemo, 5 weeks external rad, 2 brachy, 3 more chemo, have neuropathy feet and hands still, they ran cat scan at that time and found the nodule in my left lung so biopsied it to make sure wasn't adenocarcinoma and came back as carcinoid. 7/7/22 measured 2.3 X 1.9 on that scan, 9/26/22 next scan 2.5 X 1.9 cm, 4/24/23 2.3 X 1.8 cm, 7/24/23 noted as 2.1 cm states unchanged, 4/29/24 states is now 2.4 X 2.2 cm ??? I sometimes feel size changes by who reads or documents it is close to my heart - See the surgeon last wednesday, and he says we want it out. I was setup with a tele-med appt today, A NP called and started with your lower left lobe is going to be removed. I flipped out because never had anyone mentioned before my lower left lobe would be taken out. I stated so you remove for something less that an inch the lower left lobe. I asked how large is your lower left lobe that you lose the complete lobe for something not even an inch diameter, and was told everyone's is different size. So, she is suppose to be contacting the DR. and getting back to me. She told me your able to breath well it shouldn't be a problem. I cannot understand why the total lobe is removed because I can breath ok.