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Lung nodule could be slow growing carcinoid: Watch and wait is scary
Neuroendocrine Tumors (NETs) | Last Active: May 30 4:55pm | Replies (40)Comment receiving replies
Hello- I have a carcinoid nodule in my lower left lobe it measures 2.3 cm by less than 2 cm. It has been there for 2 years hasn't changed much in the 2 years. It was biopsied 2 years ago to make sure it wasn't adenocarcinoma and was told it was carcinoid. They decided that I needed to have surgery to remove it because it did change in size some. Today I had a call from a PA who told me the complete lower lobe would be taken. The Dr. never mentioned removing the whole lower lobe when I was there. and, never have I ever been told the complete lobe would be removed by the Dr. who did my hysterectomy who originally mentioned it needed to be removed. I have 1 other nodule in my upper left lung, to small mm mm to small to biopsy and a few other in my right lung mm to small to biopsy, is it common to remove a complete lower lobe for a 2.3 cm by 2 cm nodule. How large is your lower left lobe. I am not very interested in losing my ability to breath as I can now. HELP
Replies to "Hello- I have a carcinoid nodule in my lower left lobe it measures 2.3 cm by..."
Hi, my nodule is also 2.3 cm but is in the upper left lung. Biopsy is in a few weeks to confirm. However, the thoracic surgeon at Mayo told me that the location and the size of the nodule determines how it is resected and to what degree. Fortunately, the surgeon says 2.3 cm is on the smaller side, but, unfortunately, they still have to take out part of a lung. Hope this helps a little…
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Hello @terradean,
I can understand your reluctance to have major surgery. Before surgery, it is always important to get a second opinion. Have you considered this option?
A consultation with a NET specialist would be best. Mayo Clinic has NET specialists at all three of their locations (you will find appointment information at this link http://mayocl.in/1mtmR63). If an appointment at Mayo is not possible, I would seek an opinion from another NET specialist (here is a link to NET specialists throughout the U.S. https://www.carcinoid.org/for-patients/treatment/find-a-doctor/).
Was there a scan which indicated a reason for this surgery?