Hi @barracudacool, have you had a biopsy of your temporal artery to rule out GCA?
I ask because my GCA has presented twice somewhat differently from typical symptoms with severe neck pain/stiffness that extended into the scalp, pains on the side of my face, near my ears. Also extreme fatigue, loss of appetite, and a dry cough.
I never had temple or jaw pain. My scalp's been tender to the touch, but never excruciating, as the text books describe.
I was so convinced I just had muscular head and neck pain that I didn't recognize a relapse of GCA until my torso was pretty itchy without a rash, I felt faint in the mornings, and loss weight again.
If you ever have any visual disturbance, go to the Emergency Room immediately.
Taking so much Prednisone (35 mg) is a drag, but it's necessary to manage GCA.
Have you told your doictor about your symptoms?