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Lung nodule could be slow growing carcinoid: Watch and wait is scary

Neuroendocrine Tumors (NETs) | Last Active: May 30 4:55pm | Replies (40)
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@californiazebra

Hi @aclanton

Good luck with the waiting game. I waited for 12 years hearing guesses about infections vs cancer in my 50+ nodules. Initially they couldn’t biopsy without cutting my chest wide open so I refused. Eventually the largest one 2.6 cm could be reached with a needle. How long have you had it? I kept telling them remnants from an infection didn’t make sense since all the nodules were slowly growing for years. It was finally biopsied and diagnosed as typical carcinoids and DIPNECH. I’m sure you’ll be happy to be on the other sure of this and you will be.

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Replies to "Hi @aclanton Good luck with the waiting game. I waited for 12 years hearing guesses about..."
AC | @aclanton | May 28 12:40pm

Wow, 12 years @californiazebra! This is brand new to me…as in around 1 month. There seems to be a huge discrepancy as to how quickly to move, but I’m glad to hear the biopsy helped ease your mind. I truly need neck surgery soon and am ready to know one way or another about the nodule. Were any of your nodules removed?

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