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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

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@artemis1886

I have more of an advanced form of neuropathy. The IVIG keeps it from progressing if you go off of it the neuropathy progresses really fast.
You get hammertoes- they blister
I almost lost my toe amputation is common with neuropathy
I can’t feel my hands and cutting them needing stitches
I have tremors (motor part of neuropathy) my husband has to cut up my food/I can’t drink out of a bottle or glass of water it pours all over you I have to use a cup with lid.
Loss of bladder control
CAN- cardiac autonomic neuropathy- they can’t control your blood pressure and you get tachycardia/ bradycardia
Nothing can be done ( given 8 yrs to live)
Can’t feel my legs loosing my balance and falling
Dizziness
Gastroparis+ slowing digestion so food sits on your stomach for days causing nausea and vomiting
It affects any organs that have nerves including brain
If you can stop it by taking IVIG therapy. I would do it in a heart beat.

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Replies to "I have more of an advanced form of neuropathy. The IVIG keeps it from progressing if..."

Thank you. Apparently my neuropathy is progressing slowly. I will keep up with the recommended IVIG infusions.