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Internal body vibrations all night
Neuropathy | Last Active: Jun 1 7:55am | Replies (45)Comment receiving replies
You have really weathered a helluva neuro storm—and still are. To a lesser extent, so am I. I wonder if you might have had myelitis—just more extensive than mine.
Last time I checked—and correct me if I’m wrong—ALS is, as you said, a motor neuron disease, which means it doesn’t cause sensory symptoms. Nor would it improve with steroids—or anything else. It’s progressive and untreatable—last I checked anyway.
NIH would be a good option for you. I would be really interested in what they have to say. Do keep us posted. And best of luck!
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Yes!It has been so crazy!Going from a healthy person in my 40's exercising all of the time to barely being able to function.I was looking into myelitis.It looks like alot of things can cause it.Autoimmune Diseases,Viruses,etc.I just wonder if that one time iron infusion set ot off and than everything went haywire in my body.My Brain and Spine MRI were o.k.,but I wonder if they are missing something with the spine.I have not had a spinal tap or muscle biopsy yet.Just the two EMG's.You are correct about ALS.The only reason I keep on thinking it is a possibility of Motor Neuron disease is because of the twitching all over and the loss of strength when talking,swallowing,chewing.I guess that could be brought on by other diseases.I did check for MG,but had not been checked for Lambert Eaton Syndrome yet.There are so many diseases.I will let you know if they ever figure it out.Thanks Again!