← Return to Lung nodule could be slow growing carcinoid: Watch and wait is scary

Discussion
Comment receiving replies
@hopeful33250

Hello @aclanton and welcome to the NETs support group on Mayo Connect. It looks like you are new to a possible NET diagnosis.

I'm wondering if you were having symptoms that led to the diagnosis?

Jump to this post


Replies to "Hello @aclanton and welcome to the NETs support group on Mayo Connect. It looks like you..."

Hi @aclanton

Good luck with the waiting game. I waited for 12 years hearing guesses about infections vs cancer in my 50+ nodules. Initially they couldn’t biopsy without cutting my chest wide open so I refused. Eventually the largest one 2.6 cm could be reached with a needle. How long have you had it? I kept telling them remnants from an infection didn’t make sense since all the nodules were slowly growing for years. It was finally biopsied and diagnosed as typical carcinoids and DIPNECH. I’m sure you’ll be happy to be on the other sure of this and you will be.

Yes, I’m new to this group. No symptoms other than the occasional wheeze. I’d been diagnosed with asthma and thought that was the culprit. In fact, the ct angiogram was to investigate a blood vessel issue, and the nodule was found by accident.