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Rare pelvic tumor, Ganglioneuroma, anyone familiar?

Women's Health | Last Active: May 29 12:13pm | Replies (4)

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@dhansen78

Thank you for the reply, Sue
She has seen 2 OBGyns and a general surgeon, who said he has never heard of this type of tumor and his only knowledge is what he has recently read, thus, why he is referring her to the University of Iowa Hospital. The reading we have done leans towards it being a non-cancer, but, some of the information she is able to get to through her "mychart" mentions spindle cells, and larger cells with abundant cytoplasm (which again, looking up those terms, points to cancer). She has been told this is a 1 in a million case, so information certainly is limited.
Donna

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Replies to "Thank you for the reply, Sue She has seen 2 OBGyns and a general surgeon, who..."

For rare cases like these, the University is certainly a good choice. Has she considered contacting Mayo Clinic in Rochester? My brother has excellent care there for his one-in-a-million lung condition.
http://mayocl.in/1mtmR63