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Neuroendocrine Carcinoma with Liver Metastasis
Neuroendocrine Tumors (NETs) | Last Active: May 28 9:40am | Replies (29)Comment receiving replies
I was diagnosed with a net tumour in my colon in 2021. This metastasized to the liver, the colon tumor was removed. The liver has about 6-10 small tumors- too small to remove. I have received deep injections of lanreotide / somatuline autogel 120 mg. since March 2002. So far I have been doing well, the tumors have remained stable. I do wonder about the long term effects of the injections. I do exercise every day(walk/ Nordic walk at least 2 miles + exercises 3 times a week for strength and mobility) and take naps! I am 80 years old.
Replies to "I was diagnosed with a net tumour in my colon in 2021. This metastasized to the..."
Hello @physedr and welcome to the NETs support group on Mayo Connect. I am glad that you found this forum. It is a great place to both give and receive support and encouragement. I see that you have already met @pavlina60, who has a similar diagnosis.
I am glad to hear that the liver tumors have remained stable. That is very good news. The fact that you are able to still be physically active is a great indication.
I see that you are concerned about the long-term effects of the injections. Do you have any particular concerns or are you having any side effects now?
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Hello! I have similar diagnosis - pNET and liver metastases. Surgery for the pNET and debulking for the liver. I have been on Lanreotide since March 2023. So far I have noticed my hair falling and my blood glucose is elevated. I walk for exercise 2-3 mi most days. Have lost a lot of wieght, but am catching up now.