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Spinal Cord Stimulator Removal

Chronic Pain | Last Active: Aug 18 10:10am | Replies (85)

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@texasaviatrix

Bless anyone who gets relief from a spinal cord stimulator. I had absolutely no luck with it. My Nevro unit was installed about 6 years ago for severe lower back pain caused by an injury. They did a trial first for about 4 days and honestly, I couldn’t tell you now how much or even if I got much relief. I was under a lot of pressure to have the surgery and had tried just about everything else. But the SCS gave me zero relief. Every time the technicians would come up with some new “tweak”, they were confident I would get results. But it was a huge disappointment for me. I decided to try it after 8 years with a morphine pump. It was time to replace it and, although I did get some relief from the pump, the meds seriously messed with my head and I had to give up flying ( private pilot). Maybe it depends on the location of your injury? I have met a couple of people with neck pain who had good results with SCS. But a dear friend who also suffers from lower back pain recently had the same Nevro SCS implanted with the same disappointing outcome. (Different doctors as well.). It’s been over 20 years since my injury and I still haven’t found good relief. I do take morphine and hydrocodone at night, just to get comfortable enough to sleep. But I only take it at night because, if I take it twice a day as prescribed, it stops working as well. I’ve also tried cannabis and CBD, which actually does help, but my pain doc threatened to stop my pain meds RX if I continued. 🙄 (It shows up on the urine tests) Unfortunately, that alone does nothing, so I can’t afford to lose my meds. I do have a separate implant in my hip that completely blocks that pain, thankfully. What I would give for the same results for my back! I hope my experience will help anyone considering a spinal cord stimulator.

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Replies to "Bless anyone who gets relief from a spinal cord stimulator. I had absolutely no luck with..."

I feel your pain. I cannot explain why the pain pump, at a fairly high dosage, does nothing to help mitigate my pain. Sorry that the SCS did not help. I had a similar experience with the NEVRO unit. The rep insisted that it would give excellent pain relief, even after my Medtronic unit had stopped working. Even the trial was not successful. But, I was so desperate that I was willing to try just about anything. Needless to say, the unit did nothing. I am somewhat upset with the way the NEVRO rep used me. Will not be fooled again (hopefully). Those of us in severe pain are often the targets of such people.

It saddens me for you. My pain has improved a little but I am only 7 weeks from having Boston Scientific SCS. My trial was awesome, 80% relief!!! I cannot imagine what you go through. I can at least stand up, sit down and stay seated pain free but am so eager to have somewhat of active life. I don't even have a refill for my pain medication which I don't understand. I'm 77 years old and have had many prescriptions (knee replacement, hip replacement and broken ankle). I have a wonderful hubby who is a great caregiver but that is growing old for him. I understand as I was a caregiver for years but it was with pay!!! I am hopeful that in time things will improve. Suffering is difficult (PAIN!) but I shall TRY to sit here (pain free when sitting) and be grateful that I can get relief sitting. I pray you fine a solution