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"Evolution" of Seronegative RA into PMR

Polymyalgia Rheumatica (PMR) | Last Active: May 30 8:30pm | Replies (31)

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@dadcue

"Did you get therapy, find this group really helpful, or just gut it out?"

On second thought ... I did all of the above in addition to massive doses of Prednisone. I don't ever want to go on Prednisone again unless it is absolutely necessary. People should take Prednisone until they find a better solution. Prednisone should be the bridge to the solution ... not the solution. Prednisone was a very, very long bridge to my solution.

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Replies to ""Did you get therapy, find this group really helpful, or just gut it out?" On second..."

So you’re in the predator camp like her…I backed off talking about the pred vs. methopristone with my daughter because she is so wedded to the pred (she’s been on (a tiny rx) for over a decade without a definitive RA diagnosis until last week. She got really fat from it, and even took her cat’s steroids when one doctor cut her off it abruptly! She seems emotionally and physically wedded to pred. Her new doc is weaning her off it now and she’s miserable. Can’t use her hands this week. She’s terrified of the methopristone (Dr. Google makes it sound like a witch’s brew) and will not countenance discussing pros vs cons of both with me. Today I succeeded in just listening to her anger at the doc’s plan for putting her on meth and stopped trying to get her to a more objective place. In spite of her fear I convinced her to at least keep her next neurology appointment in June and use it as a sounding board for her fears of the changeover. The more she read about meth the more contrarian and anxious her attitude has become-says she’s on the fence but is observably ready to say to hell with it, leave me on steroids. I’m resigning as anything but a listener…I’m not qualified to cheerlead for meth and I can only hope her brisk-style neurologist is sensitive enough to keep the switcheroo from seeming like a pro forma (here’s what we always do) plan-it does seem seem like it’s off with the predator, on with the meth, live with the side effects, and then let’s hop to biologicals for $30,990/year? The apparent rote-ness of the neurology community’s “here’s how we all do it” plan engenders mistrust.

She’ll be joining this group-can you believe she’s been reading Reddit groups?! I’ve given her the Mayo info instead-thank you all for this transition trying time! Hope you can help her as you have me…