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Internal body vibrations all night

Neuropathy | Last Active: Jun 1 7:55am | Replies (45)

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@j77

Thankyou so much for responding.It was very crazy!I had to get a one time iron infusion for anemia for years of severe periods and I worked in an office pretty much by myself for 3 years and than decided I was going to take a girls trip to the beach because my office closed.The only thing I can think if is that I was so run down from the anemia,working several peoples jobs that when I got to the Beach I picked up covid.I have had thyroid disease since my 20s,but take no other medication.I was like a human vegetable for a year.I could barely go to the bathroom,swallow,sleep,My eyes,hair,facial muscles,etc are not the same.I thought it was Lupus or a bunch of autoimmune diseases,but the Rhuematologists could not find anything.I still worry about ALS or a motorneuron disease because I know they are hard to detect.I have loss of gag reflex and a weak duaphram/sternum area.At the very beginning of this I could not cough sneeze or yawn,but it is slowly coming back.It is just so bizarre.I have one doctor trying to get me into NIH.My legs and upper arms are swollen and weak.Sometimes they feel like jello other times like cement.I was checked for Myasthenia Gravis because I know that can come on after covid,but so can Tranverse Myelitis.Two of my first symptoms were a stiff neck and trouble swallowing.Than it got to the point where I no longer had strength in the core of my body.It was almost as if my whole body went into permanent fight or flight.My primary gave me steroids which gave me the ability to swallow and eat again.I am 5'11 and was barely over 100 pounds.It was awful.

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Replies to "Thankyou so much for responding.It was very crazy!I had to get a one time iron infusion..."

You have really weathered a helluva neuro storm—and still are. To a lesser extent, so am I. I wonder if you might have had myelitis—just more extensive than mine.

Last time I checked—and correct me if I’m wrong—ALS is, as you said, a motor neuron disease, which means it doesn’t cause sensory symptoms. Nor would it improve with steroids—or anything else. It’s progressive and untreatable—last I checked anyway.

NIH would be a good option for you. I would be really interested in what they have to say. Do keep us posted. And best of luck!