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DiscussionInternal body vibrations all night
Neuropathy | Last Active: Jun 1 7:55am | Replies (45)Comment receiving replies
Replies to "Thankyou so much for responding.It was very crazy!I had to get a one time iron infusion..."
You have really weathered a helluva neuro storm—and still are. To a lesser extent, so am I. I wonder if you might have had myelitis—just more extensive than mine.
Last time I checked—and correct me if I’m wrong—ALS is, as you said, a motor neuron disease, which means it doesn’t cause sensory symptoms. Nor would it improve with steroids—or anything else. It’s progressive and untreatable—last I checked anyway.
NIH would be a good option for you. I would be really interested in what they have to say. Do keep us posted. And best of luck!