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Internal body vibrations all night

Neuropathy | Last Active: Jun 1 7:55am | Replies (45)

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@ratmum

Whoah, that sounds traumatic. So sorry it’s happened to you.

My transverse myelitis was diagnosed by MRI. I had a lesion on my cervical spinal cord. That said, it’s unlikely but possible that myelitis may not show up on imaging.

With myelitis, depending where it is, you can have sensory, motor and/or autonomic symptoms (bowel/bladder control, among other issues)—any combination of the three. Onset is often fairly quick. So could your symptoms be explained by myelitis? Maybe.

Is there an academic medical center near you? If so, consider booking an appointment with a specialist. Neuro conditions can be difficult to diagnose.

Oh, question: when you say your legs are “big”, does that mean they are swollen? Or that they feel big (but look normal)? I can relate to the marshmallow feeling.

Be glad you don’t have ALS. 🙂

Take care!

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Replies to "Whoah, that sounds traumatic. So sorry it’s happened to you. My transverse myelitis was diagnosed by..."

Thankyou so much for responding.It was very crazy!I had to get a one time iron infusion for anemia for years of severe periods and I worked in an office pretty much by myself for 3 years and than decided I was going to take a girls trip to the beach because my office closed.The only thing I can think if is that I was so run down from the anemia,working several peoples jobs that when I got to the Beach I picked up covid.I have had thyroid disease since my 20s,but take no other medication.I was like a human vegetable for a year.I could barely go to the bathroom,swallow,sleep,My eyes,hair,facial muscles,etc are not the same.I thought it was Lupus or a bunch of autoimmune diseases,but the Rhuematologists could not find anything.I still worry about ALS or a motorneuron disease because I know they are hard to detect.I have loss of gag reflex and a weak duaphram/sternum area.At the very beginning of this I could not cough sneeze or yawn,but it is slowly coming back.It is just so bizarre.I have one doctor trying to get me into NIH.My legs and upper arms are swollen and weak.Sometimes they feel like jello other times like cement.I was checked for Myasthenia Gravis because I know that can come on after covid,but so can Tranverse Myelitis.Two of my first symptoms were a stiff neck and trouble swallowing.Than it got to the point where I no longer had strength in the core of my body.It was almost as if my whole body went into permanent fight or flight.My primary gave me steroids which gave me the ability to swallow and eat again.I am 5'11 and was barely over 100 pounds.It was awful.