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Internal body vibrations all night

Neuropathy | Last Active: Jun 1 7:55am | Replies (45)

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@j77

Hello!Can I ask you how they tested you for traverse myelitis.I had an iron infusion/got covid around the same time.Had a horrible reaction and within 6 months was bedbound.I can kind of walk again,but barely.I had an MRI of the brain and spine which were clear.I can't believe the spine was clear because I look like I have the worse case of scoliosis or arthritis.I went from walking 8 miles a day to basically being disabled.I have had tests for everything with no answers.I believe mine started in the trunk of my body.It got to where I could not lift a window or hold a purse.My upper arms and thighs are huge and I feel like Marshmallow State puffman when I walk.I know my body was attacked because It was all of my muscles.I could barely even swallow for a year.I heard that GB can start pretty much anywhere.I asked about ALS be ause I have muscle twitching,but the neurologists are telling me no.Myasthenia Gravis test was negative.I just don't know what this is.

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Replies to "Hello!Can I ask you how they tested you for traverse myelitis.I had an iron infusion/got covid..."

Whoah, that sounds traumatic. So sorry it’s happened to you.

My transverse myelitis was diagnosed by MRI. I had a lesion on my cervical spinal cord. That said, it’s unlikely but possible that myelitis may not show up on imaging.

With myelitis, depending where it is, you can have sensory, motor and/or autonomic symptoms (bowel/bladder control, among other issues)—any combination of the three. Onset is often fairly quick. So could your symptoms be explained by myelitis? Maybe.

Is there an academic medical center near you? If so, consider booking an appointment with a specialist. Neuro conditions can be difficult to diagnose.

Oh, question: when you say your legs are “big”, does that mean they are swollen? Or that they feel big (but look normal)? I can relate to the marshmallow feeling.

Be glad you don’t have ALS. 🙂

Take care!