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Internal body vibrations all night
Neuropathy | Last Active: Jun 1 7:55am | Replies (45)Comment receiving replies
Yeh, this weird neuro sheeyut is wicked scary.
It’s interesting that you can pinpoint the exact day your symptoms began. (So could I—Feb 8, 2024. Bad month, Feb 2024) I think that’s something your doctors should not ignore—could be a clue. . Once it started, did it come on fast or gradually (like over weeks)?
The distribution doesn’t sound like peripheral neuropathy. That usually starts in your feet and hands and works its way toward your trunk, often slowly. But who knows: I don’t.
Some thoughts: Have you had any imaging? Specifically MRI of your brain and spinal cord. What autoantibody tests did you have? I like the suggestion to get a pathogen work up, especially for viruses.
I had (have) transverse myelitis—inflammation of the spinal cord (autoimmune-mediated, in my case.) Not at all saying that’s what you have. Just letting you know you’re not alone and I understand the scariness of strange neuro symptoms.
Take care.
Replies to "Yeh, this weird neuro sheeyut is wicked scary. It’s interesting that you can pinpoint the exact..."
It started Feb 20 and lasts all night long, every night. Gabapentin helps turn down the volume, and interestingly, so does ear plugs somewhat. It’s not buzzing or tremors, it’s vibrations, and most intense where my body touches my bed.
I’ve started to get tingling and warm sensations in my feet (2 weeks ago) and now I get warming waves/sensations all over my body. My left foot started to burn last night, actually felt cold and hot at same time.
I had a brain mri and it showed non specific white spots. Pcp and neurologist doesn’t seem concerned.
My bloodwork has all come back normal, except for immunofixation electrophoresis shows faint
monoclonal protein, whatever that means.
I moved into old home that definitely has mold. I also had some fairly serious neck issues recently; had 2 TFESIs that have helped along with PT.
This is all very new to me, just trying to learn as much as I can from folks like you (because I am not sure Google is my friend).
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Hello!Can I ask you how they tested you for traverse myelitis.I had an iron infusion/got covid around the same time.Had a horrible reaction and within 6 months was bedbound.I can kind of walk again,but barely.I had an MRI of the brain and spine which were clear.I can't believe the spine was clear because I look like I have the worse case of scoliosis or arthritis.I went from walking 8 miles a day to basically being disabled.I have had tests for everything with no answers.I believe mine started in the trunk of my body.It got to where I could not lift a window or hold a purse.My upper arms and thighs are huge and I feel like Marshmallow State puffman when I walk.I know my body was attacked because It was all of my muscles.I could barely even swallow for a year.I heard that GB can start pretty much anywhere.I asked about ALS be ause I have muscle twitching,but the neurologists are telling me no.Myasthenia Gravis test was negative.I just don't know what this is.