Internal body vibrations all night

Please post what you find out. The internal vibrations seem rather common from what I read. Mine fluctuate. I don’t know if they are caused by my post covid syndrome, anxiety or neuropathy, which I supposedly don’t have, according to my neurologist. I’d be very interested to know. Lately, I’ve had very few.

I have not found much on internal vibrations.

I have decided to go to Mayo tomorrow and I guess go to ER. My symptoms are getting bad, fast.

Glad to hear your vibrations have subsided.

On Feb 20, at night, my entire body started vibrating/buzzing/trembling starting when I try to fall asleep and lasting all night. My PCP prescribed gabapentin, which allows me to sleep some.

I am 59 and have no health issues except for this. I have always taken good care of my self (diet, sleep, exercise, non smoker, etc).

I saw a rheumatologist who doesn’t think I have autoimmune; I am getting a second opinion June 6.

I saw a neurologist May 7 who “couldn’t rule out SFN” so she ordered blood work that all came back negative or within normal limits. Since May 7 appointment with her, my feet started tingling and experiencing warm waves for about 5 seconds. I have also been light headed in last 10 days. Somewhat fatigued.

As of yesterday, May 25, I am feeling weird sensations all over my body - chest, neck, face, arms, calf, shoulders, etc. I have a nerve conduction test scheduled Jun 7 and a biopsy punch June 10. I see a different neurologist in Austin Texas on Jun 26 (for second opinion). I am thinking about making appointments at Mayo in Minnesota. Peripheral neuropathy is a term I never heard of until a couple weeks ago.

Anybody know or understand what I am experiencing? My symptoms seem to be moving fast and not so localized like most in this group. Any help or advice is greatly appreciated. This is all very scary right now.

Yeh, this weird neuro sheeyut is wicked scary.

It’s interesting that you can pinpoint the exact day your symptoms began. (So could I—Feb 8, 2024. Bad month, Feb 2024) I think that’s something your doctors should not ignore—could be a clue. . Once it started, did it come on fast or gradually (like over weeks)?

The distribution doesn’t sound like peripheral neuropathy. That usually starts in your feet and hands and works its way toward your trunk, often slowly. But who knows: I don’t.

Some thoughts: Have you had any imaging? Specifically MRI of your brain and spinal cord. What autoantibody tests did you have? I like the suggestion to get a pathogen work up, especially for viruses.

I had (have) transverse myelitis—inflammation of the spinal cord (autoimmune-mediated, in my case.) Not at all saying that’s what you have. Just letting you know you’re not alone and I understand the scariness of strange neuro symptoms.

Take care.

Yeh, this weird neuro sheeyut is wicked scary.

It’s interesting that you can pinpoint the exact day your symptoms began. (So could I—Feb 8, 2024. Bad month, Feb 2024) I think that’s something your doctors should not ignore—could be a clue. . Once it started, did it come on fast or gradually (like over weeks)?

The distribution doesn’t sound like peripheral neuropathy. That usually starts in your feet and hands and works its way toward your trunk, often slowly. But who knows: I don’t.

Some thoughts: Have you had any imaging? Specifically MRI of your brain and spinal cord. What autoantibody tests did you have? I like the suggestion to get a pathogen work up, especially for viruses.

I had (have) transverse myelitis—inflammation of the spinal cord (autoimmune-mediated, in my case.) Not at all saying that’s what you have. Just letting you know you’re not alone and I understand the scariness of strange neuro symptoms.

Take care.

Hello!Can I ask you how they tested you for traverse myelitis.I had an iron infusion/got covid around the same time.Had a horrible reaction and within 6 months was bedbound.I can kind of walk again,but barely.I had an MRI of the brain and spine which were clear.I can't believe the spine was clear because I look like I have the worse case of scoliosis or arthritis.I went from walking 8 miles a day to basically being disabled.I have had tests for everything with no answers.I believe mine started in the trunk of my body.It got to where I could not lift a window or hold a purse.My upper arms and thighs are huge and I feel like Marshmallow State puffman when I walk.I know my body was attacked because It was all of my muscles.I could barely even swallow for a year.I heard that GB can start pretty much anywhere.I asked about ALS be ause I have muscle twitching,but the neurologists are telling me no.Myasthenia Gravis test was negative.I just don't know what this is.

It started Feb 20 and lasts all night long, every night. Gabapentin helps turn down the volume, and interestingly, so does ear plugs somewhat. It’s not buzzing or tremors, it’s vibrations, and most intense where my body touches my bed.

I’ve started to get tingling and warm sensations in my feet (2 weeks ago) and now I get warming waves/sensations all over my body. My left foot started to burn last night, actually felt cold and hot at same time.

I had a brain mri and it showed non specific white spots. Pcp and neurologist doesn’t seem concerned.

My bloodwork has all come back normal, except for immunofixation electrophoresis shows faint
monoclonal protein, whatever that means.

I moved into old home that definitely has mold. I also had some fairly serious neck issues recently; had 2 TFESIs that have helped along with PT.

This is all very new to me, just trying to learn as much as I can from folks like you (because I am not sure Google is my friend).

Whoah, that sounds traumatic. So sorry it’s happened to you.

My transverse myelitis was diagnosed by MRI. I had a lesion on my cervical spinal cord. That said, it’s unlikely but possible that myelitis may not show up on imaging.

With myelitis, depending where it is, you can have sensory, motor and/or autonomic symptoms (bowel/bladder control, among other issues)—any combination of the three. Onset is often fairly quick. So could your symptoms be explained by myelitis? Maybe.

Is there an academic medical center near you? If so, consider booking an appointment with a specialist. Neuro conditions can be difficult to diagnose.

Oh, question: when you say your legs are “big”, does that mean they are swollen? Or that they feel big (but look normal)? I can relate to the marshmallow feeling.

Be glad you don’t have ALS. 🙂

Take care!

Haha! Yes, Dr. Google can take you down many a horrifying rabbit hole.

Hmm, the mold thing is worth looking into. It’s good that you’re noticing changes in your environment that correlate with the onset of your symptoms. Not sure if you mentioned: did you tell your doctor about the mold problem in your house? I’m not sure if that can cause the kind of symptoms you’re having, but it’s worth mentioning to your doc. S/he is presumably aware of your neck issues.

White spots on brain MRI: do you have a history of migraines? Or, like me, auras without the headaches?

Oligoclonal protein, if faint, may be nothing. Definitely ask about it or anything that doesn’t make sense in your medical record. Answering your questions is one reason they get paid the big $$$.