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← Return to Thoughts on Prolia?
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I consider it wise to avoid Prolia, though I don't think your reaction to alendronate is an indication that you would have an adverse reaction to Prolia.
You might take a look at Forteo or Tymlos. One nice thing about these medications is that you can quit taking them and they leave your system withing 24 hours. So you don't have lingering adverse events.
The other nice thing is that they build the best bone. Even so, they don't work in every body.
Whatever you decide to take you might ask for bone markers before you start for a baseline and 1 month in with Evenity, 2 months in with Forteo and Tymlos and three months in with Reclast. (Don't even think about Prolia; just thinking about it will give you nightmares.) The markers (P1NP and CTX) will let you know if the medication is working for you so you don't take it for a year and then find out.
Replies to "I consider it wise to avoid Prolia, though I don't think your reaction to alendronate is..."
gently, Thank you for all the time you put into discussing things on this site. You, windyshores, and others have done more than you know for me, and I am sure many others.
I am newly diagnosed and will have my second meeting with a bone specialist specializing in osteoporosis, in July at which time they will discuss my treatment options. They have ordered the bone markers, X-rays, parathyroid test, etc that so many have discussed here. So far I have done the X-rays and have no fractures. My dexa was -3.6 spine, and osteopenia everywhere else.
In the meantime, I have had a meeting with the PA of a rheumatologist that my PCP referred me to. Had I not been reading on this site, I might well have jumped into what he was strongly suggesting. He said I would never get approved for Tymlos as first med, even though I have acid reflux issues.(I knew that from reading in this site.) He said I would have to try Fosomax first, and then if I couldn’t tolerate it maybe I could get Tymlos. After that he would put me on Prolia for the rest of my life (I am 62). When I said I would like to think about it and see what this other doc recommends, he told me I had one of the worst cases he had seen in his 20 years of practice, for someone so young and that I’d better hurry up and start taking something quickly and I better not fall. When I asked him about bone markers, etc, he didn’t know what I was talking about. After the meeting I went to my car and cried. Then I remembered all these courageous, independent, well-informed women on this site like you, and I put on my big girl panties and resolved to keep researching and go into my next meeting in July well informed and ready to advocate for myself, while also listening to what I know will be more professional advice than the rheumatology PA! Thank you thank you thank you, and many blessings!
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Thank you!!