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Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?
Liver Cancer | Last Active: 11 hours ago | Replies (74)Comment receiving replies
Welcome, @lorid01. Your story offers hope. I'm encouraged that you are living your life and post treatment feel great with no limitations. I think it is perfectly normal to think, even if only periodically, about a possible recurrence or return somewhere else.
I'm tagging fellow members like @afrancesca @kjrita @egoodies @jerrydrennan @kennym who can share their experiences too.
Lori, how often do you have follow-up appointments?
Replies to "Welcome, @lorid01. Your story offers hope. I'm encouraged that you are living your life and post..."
Colleen can you include me in your group of cholangiocarcinoma patients /caregivers? My husband was diagnosed a month ago. I would really like to connect with some people who have been through this who can help us and give us some guidance. Thank you so much, Elisabetta
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My mother (egoodies) died with bile duct cancer on May 21st. I said with bile duct cancer and not “of” bile duct cancer because her other issues (liver disease, diabetes, and kidney disease were ultimately what killed her.) She did radiation at NYC proton center and the cancer didn’t spread terribly afterwards but the damage was done. There were many horrible factors. I feel as though MSK in NYC was the death of her. She wasn’t well enough to make the trip to the Mayo Clinic. I wish she had been. We are all distraught. I think of those battling bile duct cancer all the time. I have hope through your stories that others will be healed and thrive.