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Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Liver Cancer | Last Active: Sep 24 7:06am | Replies (23)
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@colleenyoung

Welcome, @lorid01. Your story offers hope. I'm encouraged that you are living your life and post treatment feel great with no limitations. I think it is perfectly normal to think, even if only periodically, about a possible recurrence or return somewhere else.

I'm tagging fellow members like @afrancesca @kjrita @egoodies @jerrydrennan @kennym who can share their experiences too.

Lori, how often do you have follow-up appointments?

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Replies to "Welcome, @lorid01. Your story offers hope. I'm encouraged that you are living your life and post..."
egoodies | @egoodies | Aug 4 2:18pm

My mother (egoodies) died with bile duct cancer on May 21st. I said with bile duct cancer and not “of” bile duct cancer because her other issues (liver disease, diabetes, and kidney disease were ultimately what killed her.) She did radiation at NYC proton center and the cancer didn’t spread terribly afterwards but the damage was done. There were many horrible factors. I feel as though MSK in NYC was the death of her. She wasn’t well enough to make the trip to the Mayo Clinic. I wish she had been. We are all distraught. I think of those battling bile duct cancer all the time. I have hope through your stories that others will be healed and thrive.

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