Thanks for your response!
I have been miserable. And the dermatologist just guesses. I have been to 4 of them! All same practice but differ docs.. And because I have had rashes many times previously we are still unsure what it is caused by. After the latest rash subsided which is always a couple days after I start a steroid taper another started. This was the one that was the worst ever. I look like a monster. Big hard blisters on my arms and upper chest. And my arm and hand are super swollen. I started to wear the lymphedema sleeve I had gotten 6 years ago. Never had to use it. The derm said it looks like sun poisoning, especially since it was only on sun exposed areas. I told them I had NOT been in the sun. She said that maybe it was just a delay reaction cause I was finishing the steroid taper. Now she started me on another 16 day taper.. it is helping already. I have not notified my oncologist yet. I think she will not be happy about how I look. I just dont want to change meds yet... And need to start taking better calendar notes on timings.
I just started Xgeva for the bone mets so I need to see if rash is a side effect. I hate rashes!!!