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"Evolution" of Seronegative RA into PMR
Polymyalgia Rheumatica (PMR) | Last Active: May 30 8:30pm | Replies (31)Comment receiving replies
@ferret911
your admiration of @dadcue is well placed. He has the strongest understanding by training and personal experience of clinical presentations - varied as they are as anyone in the PMR /RA arena. And he's bloody brilliant.
I spent six years working for a large group of Neurologists focused on diagnostics. So I’m more interested in the data and the research. I spend a lot of my free time reading research design and results. Not because i think I can be my own doc. But in hopes i can ferret out the direction research is taking.
To me, if you want to engage for the benefit of your daughter, focus on patient feedback on docs she has access to. Get the best doc with skills and a heart you can assist in finding. But my advice is that you support, not so much drive.
Finally, in the way of unsolicited advice, I have tried concierge docs twice and won’t do so again. It’s a grand premise that in my experience fails to deliver the superior intellect that presumably underpins the practice. Give me a physician - currently or in their recent history, of providing healthcare in a massive, messy, exhausted but intellectual teaching hospital. No one else is as close to the cutting edge.
Good luck and reach out for support when you need it!
Replies to "@ferret911 your admiration of @DadCue is well placed. He has the strongest understanding by training and..."
"Bloody brilliant" is over the top but some of the doctors I worked with certainly were brilliant. I was sort of a middle person ... One realm and most importantly was as a patient and RN. The other realm was more analytical and logical. I worked with brilliant doctors who did medical research who liked my background as a statistician and RN. I think I was a better RN but I liked to try and make sense of the numbers.
The only thing I learned from the medical research side of things is that it doesn't correlate very well with the clinical side of things. The doctors in the intellectual teaching hospitals focus on the research at the expense of the patients they treat. I tried to bridge the gap as much as I could. For the most part ... nothing was logical.
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Your words of wisdom will be a daily reminder to me of how to help the right way. Tge statistics on the family of ailments are staggering-I’ll do what I can to support the Arthritis Foundation, which I discovered has a phenomenal website and so many different ways to help families AND patients. My thanks to you for my new Daily Read-today her hands can’t function, a new guest at tge party. I read your comments while ruminating how to communicate my concern and love (instead of more obsessed googling). Thank you!,