I have severe axonal sensorimotor polyneuropathy
SFN
Can - cardiac autonomic neuropathy- they can’t do anything my blood pressure and heart rate are either high or low. I was told I only had eight years left. Medications don’t stop the bradycardia/ tachycardia
Neuromuscular neurologist
Neuromuscular physical therapist
Immunologist
Rheumatologist (since mine is autoimmune.
I was on gamma goblin as a child from age 10-18. Taken off when I fell off my parents insurance.
My symptoms are on the severe side. Dr Oaklander wrote my doctors and told them they had been negligent in my care that I should not be in the shape I am in. They decided to start doing something. Dr Oaklander wants me back on IVIG therapy. She told me it takes at least six months to start working. I have a weak immune system and get sick really easy. They have finally treating me for my RA and they believe I have CIDP which is a form of neuropathy that affects the immune system. I am supposed to follow up with her in a year. Since, I don’t live in a state she practices in she cannot treat me. She practices in Boston , Florida and another state I would have to look it up.