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← Return to Anyone doing Chemoradiation?
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My experience from a timing was similar - some time (15 min) to review symptoms and check vitals/weight, 60-90 minutes to get the labs done and reviewed by the oncologist, then some variable wait for the pharmacy to mix/deliver the chemicals per the doctor's order, then the initial port entry/flush/steroid followed by the leucovorin, then the oxaliplatin and last the 5FU. Once confident that the 5FU infusion/pump was working and I wasn't having a bad reaction, they'd send me home with the pump to return 46 hours later. Overall, I'd get there at 9-9:30AM and leave around 3:00-3:30PM. I got so tired doing nothing.
The port being red and itchy is pretty normal.
At Red Wing I could munch on cookies and order a lunch from the cafeteria which would be delivered to the infusion center. They had an infusion room with capacity of 5 patients, but also had one private room with TV which I occasionally was lucky to get. Even during COVID, they were pretty much at full capacity.
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This place is a satellite of main campus Not buzzy at all Its bring your own food or eat nothing I found the hospital lab on a normal work load takes 10-15 at max told an hour for the lab appointment 8:30 then wait for a body to look at the labs another hour, then call to main office another hour and then drugs come Been at the site since 8:30 am and drugs not starting until 12:00 I guest this is their feeling we have no other life that this clinic
This is the constant lying I get shoveled to me when I can disprove their procedure. Last appt a nurse aid insist I was there for a treatment. I keep saying no it is a toxic blood draw that's all. She was adamant until she looked up the appt on the computer and saw she was wrong. No I am sorry or yes you are correct. If she does this again I will say gee I am sorry you are correct. SO many of the professionals demand you jump to their commands. I get them by saying please and thank you. The stares I get for just some simple words SO I am labeled as difficult patient I tell them be truthful if you don't know say so we can work it out. No just keep piling lies on top of lies