Connect
← Return to Rare Cancer: Gynecologic Extramammary Paget's Disease
Discussion
Rare Cancer: Gynecologic Extramammary Paget's Disease
Gynecologic Cancers | Last Active: Oct 24 10:43am | Replies (76)Comment receiving replies
I have doctor prescribed medical cannabis (THC) to put on it whenever needed - especially after urinating. Also a special water squirt bottle that dilutes urine so it burns less. There's a name for the bottle which I'll look up if you don't know what I mean. peri-something... I think. Anxiety is high - sometimes more than others. So far, it has been non-invasive and it's been there at least ten year - undiagnosed until April 2023. When I go out of Canada (where cannabis is legal) I had to do something else. Used a white cream Zincofax from the baby diaper rash section of the pharmacy --- seeing doctor in cannais clinic tomorrow. Will find out if there was a better option. He also prescribed cannabis liquid under tongue morning and night.
Replies to "I have doctor prescribed medical cannabis (THC) to put on it whenever needed - especially after..."
Good morning! Oh dear: you are suffering. Too bad you are not in California because cannabis save is legal.... never put it there though but at every manifestation i am told to use Imiquimod. It treats the EMPD of the vulva manifestations. The itching and burning i have is from the Imiquimod that i take topically for like 8 weeks. My oncologist and I have found my tolerance level of side effects. i don't before itch and burn before treatment but a visual from my ob/gyn reveals skin manifestation. i have been told repeatedly that i need to look there every so often because one can see like an aging spot.... I was also told repeatedly that it is a slow growing pre cancer type of cancer. I am 68 and went to what I thought was my last pap smear at 65. There is no pap smear after 65 but it is recommended to get the visual exam once a year. I would be more comfortable if I could get the visual every 6 months. Cold pad wrapped in a towel, and alternatively hot pad wrapped also off and on when itchy and burning. sit bath also (seat bath?)... lidocaine to numb... other meds to help with itching burning... I am all for it since I don't tolerate this kind of pain... let me know how it goes for you over time. Blessings
Connect
Thank you for all that helpful info. I don't think I can use cannabis because I take a blood thinner, Eliquis. I am interested in the squirt bottle thing. And thanks also for the Zincofax hint. I use Desitin, also a diaper rash treatment, for other issues down there. But it did nothing for my lesion, which I now know is EMPD.