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@artemis1886

I have severe axonal sensorimotor polyneuropathy.
SFN, CAN- cardiac autonomic neuropathy ( you are given approx. 8 years left to live because they can’t control your heart rate beats too slow or fast. I have problems with blood pressure it was high for two weeks cardiologist put me on blood pressure meds then my pressure dropped I passed out then it went back to normal). I have tremors in my legs and hands from the motor neuropathy my husband has to cut my food and I can’t drink out a bottle of water or glass without it ending up on the front of me. I am 62 years old I don’t want to be elderly and overdosing on pain meds. Marijuana has been shown to cause nerve regeneration.
That’s why I suggested Dr Anne Oaklander’s lecture on YouTube. There has been a lot of research by Israel and other countries on it.

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Replies to "I have severe axonal sensorimotor polyneuropathy. SFN, CAN- cardiac autonomic neuropathy ( you are given approx...."

Artemis I have a pacemaker so my heart rate never drops below 60 beats a minute. Before I got it my working heart beat was only 47 beats a minute and 27 when I slept. I just had my 3rd battery put in and I’ve had this for about 20 years. Why can’t you see a cardiologist and ask him about a pacemaker.

Artemis1886.
After an EMG I was told I have Axonal sensory Polyneuropathy. Is that what you have (it sounds almost the same) ? If it is, I have learned more from you than 2 neurologists, who told me nothing. I have no idea what to expect, how to deal with it, nothing other than in 2/3 months with PT I should be able to walk with a walker. Well, 3months later and I am bedridden with numbers legs, feet and hands which gets worse by day. This really sucks.

I’m suffering for autonomic neuropathy. My symptoms are horrible and they seem to bounce around my body like a popcorn and a popcorn fryer try myalgia because of it which is pretty most painful thing I’ve ever ever had. I take roughly on average 15 to 1800 mg of gabapentin every day And I smoke tons of marijuana and it helps. It definitely helps plainly if you’re new to it. I wouldn’t go around driving a car. I’ve been smoking for years once diagnosed with autonomic neuropathy, I tend to smoke all the time I have no problem doing that. I have a problem with pain to do whatever it takes and yes, I know my lifespan is limited probably have 5 to 7 years not quite what I expected my parents live into their 90s And I am 67