← Return to Small fiber neuropathy?

Discussion

Small fiber neuropathy?

Neuropathy | Last Active: May 31 9:23am | Replies (98)

Comment receiving replies
@artemis1886

I am not diabetic. Mine is autoimmune. I have had emg/nerve conduction test and biopsy. You can get neuropathy from medications, diabetes, autoimmune and idiopathic.
I was diagnosed with severe axonal sensorimotor (another word) polyneuropathy. B6 is not a good vitamin to take. It takes years to get out of your system. Dr. Oaklander told me to take a multivitamin every other day. I also take B12 shots the first two days high after the shot them starts coming down. Due to the neuropathy I have Gastroparesis and I can go for days without eating. I was diagnosed with cardiac autonomic neuropathy. To confirm it they did the test for SFN. The biopsy is considered the gold standard to diagnosing SFN.
My neurologist did the biopsy in three different places. You can’t tell someone they have SFN without the biopsy.
I am fixing to be tested for CIDP and a spinal tap to confirm.

Jump to this post


Replies to "I am not diabetic. Mine is autoimmune. I have had emg/nerve conduction test and biopsy. You..."

I am going to Kings College in London in August. I will see a consultant who is an expert in the field of Peripheral Neuropathy. It all happened in 2020 together with tinnitus under active thyroid Dysmotility of Osophaegus IBS and Pericarditis. You couldn't make it up! I lost a load of weight and went down to 7 stone. I think I have had a record number of tests at my local hospital that I should have a plaque on the entrance wall! I just want to know how I got it all. I never got COVID or was this another form. I really don't think the scientists are anywhere near knowing enough about the COVID NIGHTMARE. I am taking B12 in tablet form but my neighbour has shots like you and finds them to be very beneficial. I will ask my GP if I can have them.