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Rare Cancer: Gynecologic Extramammary Paget's Disease

Gynecologic Cancers | Last Active: Oct 24 10:43am | Replies (76)
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@joyceinil

I am very new here and just learning the ropes. Just diagnosed. I thought surgery was the preferred treatment. May I ask what "treatment" is keeping things in check for you? I am 84 and probably can't stand surgery. Wondering if and what any other options are. From what I have read I get the idea that EMPD recurs a lot. Guess that's just the nature of the beast. My dermatologist has been treating me for lichen sclerosis for nearly three years before taking a biopsy last week.

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scintillation | @scintillation | Jun 19 11:54pm

Topical imiquimod cream is supposed to be a somewhat effective option - but the recurrence rate is pretty high. Apparently people have also tried photodynamic / red light therapy and lasers but it isn't very common. I can't provide the link I found since this forum blocks it but if you google "henry ford extramammary paget's disease" there's a recent publication titled: "Evidence-Based Clinical Practice Guidelines for Extramammary Paget Disease" that explains different treatment recommendations for EMPD.

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