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← Return to Anyone doing Chemoradiation?
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Colorectal Cancer | Last Active: Jun 2 1:16pm | Replies (41)
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every 12 days if I can get the hopital folks to work with me Think I should be there at *;30 am then sit for an hour & half to see a doctor to tell me labs are good They have been since I started this treatment Then sit for 6 hours with drugs going into me I have done some calling like lab & pharmacy to find out how long they take. Boy am I being lied to on how much time they need So since they are so dead set on me being there early guess who is going directly from the farm no shower no clean clothes.to them Hope they enjoy the auora
Port still itches and is red but nobody seems to care
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My experience from a timing was similar - some time (15 min) to review symptoms and check vitals/weight, 60-90 minutes to get the labs done and reviewed by the oncologist, then some variable wait for the pharmacy to mix/deliver the chemicals per the doctor's order, then the initial port entry/flush/steroid followed by the leucovorin, then the oxaliplatin and last the 5FU. Once confident that the 5FU infusion/pump was working and I wasn't having a bad reaction, they'd send me home with the pump to return 46 hours later. Overall, I'd get there at 9-9:30AM and leave around 3:00-3:30PM. I got so tired doing nothing.
The port being red and itchy is pretty normal.
At Red Wing I could munch on cookies and order a lunch from the cafeteria which would be delivered to the infusion center. They had an infusion room with capacity of 5 patients, but also had one private room with TV which I occasionally was lucky to get. Even during COVID, they were pretty much at full capacity.