Internal body vibrations all night

Posted by cst @cst, May 11 2:17pm

My entire body started vibrating internally 3 months ago (Feb 2024) at night. I take 300-600 mg gabapentin each night and it helps some. I’ve been blessed with incredible health my entire life, although I have had some neck problems (stenosis) recently, starting in Dec 2023; two TFESIs made it better. I am 59 yo and recent Air Force retire. I am fairly certain I don’t have any underlying conditions (diabetes, autoimmune, HIV, Lyme, etc). Rheumatologist doesn’t think I have autoimmune; getting a second opinion soon. Neurologist “can’t rule out SFN” so I just gave blood and have a nerve conduction test scheduled.

Q: Anybody have similar experience with internal vibrations all night long?
Sometimes I can feel them somewhat during day. If so, please share your experience.

V/r
Chris in Texas

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j77 | @j77 | May 14 9:22pm

In reply to @pah17 "Do you take Gabapentin by chance?" + (show)

Hello!At the very beginning of my illness they put me on that with many other medications.I was so ill they were trying everything.I was basically like a human vegetable for close to a year.Covid attacks the vagus nerve,central nervous system,etc.I only take synthroid now.That is the only medication I have taken my whole life.I just like to know what I am feeling incase my symptoms change.I just saw your other comment.I do sometimes have ringing in my ears,but at the same time my hearing can be crystal clear.At night time I can hear Cars driving on the highway and it literally sounds like I am right next to the Highway.Very creepy.Did you have covid?

cst | @cst | May 14 10:30pm

Yes, I had mild case of Covid in Jan 2022.

cst | @cst | May 26 3:52pm

On Feb 20, at night, my entire body started vibrating/buzzing/trembling starting when I try to fall asleep and lasting all night. My PCP prescribed gabapentin, which allows me to sleep some.

I am 59 and have no health issues except for this. I have always taken good care of my self (diet, sleep, exercise, non smoker, etc).

I saw a rheumatologist who doesn’t think I have autoimmune; I am getting a second opinion June 6.

I saw a neurologist May 7 who “couldn’t rule out SFN” so she ordered blood work that all came back negative or within normal limits. Since May 7 appointment with her, my feet started tingling and experiencing warm waves for about 5 seconds. I have also been light headed in last 10 days. Somewhat fatigued.

As of yesterday, May 25, I am feeling weird sensations all over my body - chest, neck, face, arms, calf, shoulders, etc. I have a nerve conduction test scheduled Jun 7 and a biopsy punch June 10. I see a different neurologist in Austin Texas on Jun 26 (for second opinion). I am thinking about making appointments at Mayo in Minnesota. Peripheral neuropathy is a term I never heard of until a couple weeks ago.

Anybody know or understand what I am experiencing? My symptoms seem to be moving fast and not so localized like most in this group. Any help or advice is greatly appreciated. This is all very scary right now.

windyshores | @windyshores | May 26 4:16pm

In reply to @cst "On Feb 20, at night, my entire body started vibrating/buzzing/trembling starting when I try to fall..." + (show)

I have had strange sensations for 20 years with no answers. Did I ask you before about Lyme testing? Also consider a reaction to electromagnetic radiation. (I started reacting to wifi, smart meters etc.). I have found that medicines can increase sensations as well. Does a hot shower or bath help you?

cst | @cst | May 26 4:27pm

In reply to @windyshores "I have had strange sensations for 20 years with no answers. Did I ask you before..." + (show)

Neg for Lyme.

Hot shower doesn’t do much but I take one right before bed hoping to sleep better. My new Apple Watch says I sleep okay, which I dispute!!

Only meds I take is gabapentin.

Interesting thought about electromagnetic radiation. I’ve actually thought about that as potential issue. How do you test / know?

We moved into old 1938 home last fall, that I discovered has mold issues this week. Currently staying at my sisters. Tested water this week for lead with cheap $15 test off Amazon, was neg.

windyshores | @windyshores | May 26 9:32pm

In reply to @cst "Neg for Lyme. Hot shower doesn’t do much but I take one right before bed hoping..." + (show)

Mold can cause a lot of symptoms. (Some people on the electromagnetic sensitivity forums say that mold can cause sensitivity to that but I have no idea..,I had a serious electric shock that made me sensitive).

See if you feel better out of that house, but it takes time. An integrative or functional medicine doctor is good with mold issues and can do some testing.

I cannot tolerate gagbapentin. I have burning, tingling, prickly etc. and chills- even when I get in a hot shower.

cst | @cst | May 26 9:45pm

In reply to @cst "On Feb 20, at night, my entire body started vibrating/buzzing/trembling starting when I try to fall..." + (show)

Yes, I need to get tested for exposure to toxic mold, although I don’t think that is as simple as it sounds. My wife has no symptoms, but I’ve read it affects everyone differently. Thanks for the information and advice.

artemis1886 | @artemis1886 | May 27 7:15am

In reply to @cst "On Feb 20, at night, my entire body started vibrating/buzzing/trembling starting when I try to fall..." + (show)

Small Fiber Neuropathy confirmed by biopsies not blood draw. Ask your neurologist to do the biopsy.

cst | @cst | May 27 8:32am

In reply to @artemis1886 "Small Fiber Neuropathy confirmed by biopsies not blood draw. Ask your neurologist to do the biopsy." + (show)

Yes, have biopsy scheduled

celia16 | @celia16 | May 27 4:11pm

In reply to @cst "Yes, have biopsy scheduled" + (show)

Please post what you find out. The internal vibrations seem rather common from what I read. Mine fluctuate. I don’t know if they are caused by my post covid syndrome, anxiety or neuropathy, which I supposedly don’t have, according to my neurologist. I’d be very interested to know. Lately, I’ve had very few.