← Return to Chronic Pain members - Welcome, please introduce yourself

Discussion

Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 19 hours ago | Replies (7049)
Comment receiving replies
@rwinney

I'm so sorry, not knowing what to expect must be scary. Not being familiar with your diagnosis I'm kind of winging it but that's why I love mentoring - keeps the brain sharp and learning new things.

Allow me to introduce you to my fellow mentor, John @johnbishop, who had been involved with the following discussion -

PMR or Steroid Myopathy:
https://connect.mayoclinic.org/discussion/pmr-or-steroid-myopathy/
Have you had a chance to browse our Digestive Health Support Group?
https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/
Cachexis or Cahexia is mentioned in various discussions but I'm not sure which applies to your situation. You can use the search bar at top to search the term you are looking for and hopefully connect with others.

Hoping this helps. Have a wonderful Memorial weekend.

Jump to this post

Replies to "I'm so sorry, not knowing what to expect must be scary. Not being familiar with your..."
John, Volunteer Mentor | @johnbishop | May 26 2:53pm

Thanks for the tag Rachel @rwinney. Hi @catartist, I'm not familiar with Cachexia either but I did see some information that sounds like it might be what your doctor mentioned.

"Rheumatoid cachexia refers to the loss of muscle mass and strength due to rheumatoid arthritis (RA). It’s often called muscle wasting. About two thirds of people with RA experience this complication if they don’t control their RA."
--- Rheumatoid Cachexia: Symptoms, Causes, and Treatment: https://www.healthline.com/health/rheumatoid-cachexia.

Like Rachel mentioned there are a few discussions and members who have shared their experience with Cachexia but it's related to cancer and not RA. Here's a search link if you want to scan through the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=cachexia

@slkanowitz mentioned RA and muscle atrophy in another discussion and may have some thoughts to share with you on managing symptoms.

VIEW AND REPLY