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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 6 hours ago | Replies (6901)
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@catartist

Oh how kind Rachel! And helpful. I do still need to take 5 prednisone daily - can’t get off due to pain - take lots more for pain too (Orencia, tramadol, Tylenol) but never free of it. I make myself keep moving and trying- little energy but moving does help. (pT once a week. Other at home) Always ate well and now trying to eat more - stopped weight loss at 97 ish. Would love to hear from others trying to manage Cachexis etc. it‘s not knowing what to expect that is so hard. Must keep moving

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Replies to "Oh how kind Rachel! And helpful. I do still need to take 5 prednisone daily -..."
Rachel, Volunteer Mentor | @rwinney | May 26 12:51pm

I'm so sorry, not knowing what to expect must be scary. Not being familiar with your diagnosis I'm kind of winging it but that's why I love mentoring - keeps the brain sharp and learning new things.

Allow me to introduce you to my fellow mentor, John @johnbishop, who had been involved with the following discussion -

PMR or Steroid Myopathy:
https://connect.mayoclinic.org/discussion/pmr-or-steroid-myopathy/

Have you had a chance to browse our Digestive Health Support Group?
https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/

Cachexis or Cahexia is mentioned in various discussions but I'm not sure which applies to your situation. You can use the search bar at top to search the term you are looking for and hopefully connect with others.

Hoping this helps. Have a wonderful Memorial weekend.

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