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Neuroendocrine Carcinoma with Liver Metastasis

Neuroendocrine Tumors (NETs) | Last Active: May 28 9:40am | Replies (29)
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@qbandoc1

After 2 yrs of intermittent diarrhea, I was diagnosed with NET around Dec 1. It probably started in the appendix and spread to liver. I received 8 cycles of oxaliplatin, 5 FU and Imfinzy every 2 weeks. After 4 cycles I was clear by PET, thank goodness. Now i am on Imfinxy,once a month and Xeloda, an oral 5FU. I hope to go back to work in a week on a limited schedule. I don’t know how many people are getting this regimen, am curious to know.

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Replies to "After 2 yrs of intermittent diarrhea, I was diagnosed with NET around Dec 1. It probably..."
Teresa, Volunteer Mentor | @hopeful33250 | May 26 4:41pm

Hello @qbandoc1 and welcome to the NETs support group Mayo Connect. It sounds like the treatment plan has been quite effective for you. You must be relieved! Going back to work on a limited basis must feel very good.

We have another member who has mentioned the Imfinzi treatment, here is a link where he posted about it,

https://connect.mayoclinic.org/comment/793209/

If you go to the Search icon at the top of your screen, you can enter the names of the other meds you mentioned, and it will provide you with posts that mention these medications.

How are you feeling now? Is your appetite, OK?

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